first_imgThe ALS Association of Northern New EnglandHires Larry Lewack as Executive DirectorLarry Lewack has been hired as Executive Director by the local chapter of the ALS Association. A long-time Burlington resident, Mr. Lewack brings fourteen years of non-profit management experience to this leadership role. His prior nonprofit roles include three years as Director of Barrier Free Justice Vermont, which serves victims of crime with disabilities. Before that, he was Coordinator of the Community Network for Children, Youth & Families, which works to improve supports to victims of child abuse and their families.In his new role, Mr. Lewack will be working with a volunteer Board and staff based in all three northern New England states (Vermont, New Hampshire and Maine). The chapters main office, at the Champlain Mill in Winooski, also serves as home base for staff members Tonia Zampieri and Sharon Teixeira, both of Essex Junction, who support the chapters fundraising and finance functions, respectively. The chapter also has patient services staff based in New Hampshire and Maine, and works closely with medical providers at ALS clinics at both Fletcher Allen and Dartmouth Hitchcock hospitals.The mission of the ALS Association, Northern New England chapter is to provide patient services and increased public awareness to residents of Maine, New Hampshire and Vermont about the disease of amyotrophic lateral sclerosis (ALS, commonly referred to as Lou Gehrigs Disease). The chapter links ALS patients, caregivers and family members with needed equipment, personal support and community-based services designed to improve the patients quality of life, and bring help and hope to all those affected by this disease.ALS (Amyotrophic Lateral Sclerosis) is a fatal neuromuscular disease with no known cause or cure. Nerve cells within the brain and spinal cord are attacked and killed, eventually inhibiting all ability to move. The average lifespan is two to five years from diagnosis. However, many people succumb to the disease in less than two years. ALS is characterized by the loss of voluntary and autonomic muscle movement and use, eventually making it impossible for people to move, swallow, speak or (eventually) breathe on their own. A persons senses and intellect after diagnosis with ALS remain sharp, however.For more information on how to help, please call 802-862-8882 or visit: is external).last_img

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